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Description

Making clinical audit data transparent In his transparency and open data letter to cabinet ministers on 7 July 2011, the prime minister made a commitment to make clinical audit data available from the national audits within the National Clinical Audit and Patient Outcomes Programme. What information is being made available? Percentage of children and young people with diabetes who are receiving all of the 9 key processes of care for diabetes, by participating paediatric unit. Percentage of children and young people with diabetes who have had their Hb1Ac checked and recorded, by participating paediatric unit. Percentage of children and young people with diabetes against number of episodes of diabetic ketoacidosis, by participating paediatric unit. Paediatric units are identified by name and their national code. These data do not list data about individual patients nor does it contain any patient identifiable data. Using and interpreting the data The data are based on voluntary submissions from specialist paediatric units caring for children and young people with diabetes in England. Records in paediatric units are still predominantly paper-based making data collection difficult and often incomplete. Due to the limitations paediatric units face when trying to submit complete data sets to the audit, care should be taken with the interpretation of care process data. Low results are very likely due to the absence of data rather than an indicator of practice. Stratification of paediatric audit data may lead to some results being based on a small number of patients. Care must be taken when assessing the significance of these results. For complications, the data submitted to the NDA from paediatric units is linked to data from the Hospital Episode Statistics (HES). Comparison against the DKA data allows the accurate assessment of DKA rates in children and young people with diabetes. Data from children and young people diagnosed with diabetes within the audit year have been excluded because paediatric units cannot influence the prevention of DKA at diagnosis. Accessing the data For subsequent years data from the Paediatric National Diabetes Audit will be made available by the Royal College of Paediatric and Child Health (RCPCH) in CSV format. What does the data cover? The data measure levels of completeness for data submitted to the Paediatric National Diabetes Audit and measures of performance in the audit at trust level for key performance measures for assessing standards of care for diabetes in paediatric units. Details of these standards and further information on the audit can be found in the National Diabetes Paediatric Audit Report 2009-2010 , available from the diabetes audits download page. Are all paediatric units included? All paediatric units in England that manage children and young people diagnosed with diabetes are eligible to submit data. However not all units submit data due to the limitations outlined above. What period does the data cover? These data were submitted from participating paediatric units between September and November 2010. These data pertain to the care provided to children and young people with diabetes in participating paediatric units from 1 January 2009 up to 31 March 2010.

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